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Saturday, March 27, 2010

Update


I just wanna say that God is Good! Great and Awesome actually.

I posted about my friend and her newborn just a while back.  I felt it was only fair to those who don't know her to bring y'all up to speed.  The babe has had his surgery.  He came through it like a ROCK STAR!!

The alarms, meds, bells, whistles, and tubes are fallin' by the wayside in short order.  If he keeps doing as well as he is, he will be home sooner than later.  That doesn't mean he doesn't still need our prayers for continued healing, growth and health, or that mommy and daddy and sis don't need prayers for comfort, strength, and blessings.  But, man.... they have had a long journey in a short time and come a looooooong way!!

So thanks to everyone who said a prayer or kept a positive thought or sent positive energy their way.  Keep it up.

If you wanna read up on Congenital Diaphragmatic Hernia, click the link http://www.breathofhopeinc.com/





And remember, 

March 31 is National CDH Awareness Day!


Rock Turquoise in support of the babies and families affected by this condition!

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Saturday, March 13, 2010

I hate it when I can't fix things...(UPDATED)



Turquoise Ribbon for Congenital Diaphragmatic Hernia Awareness Day, March 31, 2010





Anyone who follows me on the Twittah or is a Facebook friend knows that my friend Adwina is going through the worst possible kind of parental hell on earth right now.

Dwina gave birth 10 days ago to a sweet, beautiful baby boy.  That's the good news.  The bad news is that he was born very sick, and has spent his whole life so far at Children's Hospital in St. Louis.

Every communication I have had with Dwina has been very hopeful, and everyone else I know who has talked to her has commented on how "upbeat" she has been.  And things are actually looking pretty good for Lil' Man at this point.

But today, on her FB status, Dwina finally let some of the hurt and anger out.

I, for one, applaud her!!  I wanna holler with her!  While we're all praying our collective asses off for Lil' Man's healing and for the family's comfort and support, I think it's perfectly normal, natural and expected for Dwina to be a lil' miffed at the Almighty.  I mean, she was a good pregnant mommy.  She went to the doc, ate well, took care of herself.... and it's just not fair that this arbitrary bullshit random congenital condition should befall Lil' Man.

And you know what?  I feel pretty sure that God ain't mad.  I think He's in His heaven, with a tear in His eye, saying to Himself, "You're right.  It ain't fair.  But I'm here.  We'll get through it, one way or another."

The Big Dude knows this is some ol' bullshit, and He understands that we're only human.  We tend to get in our feelings a little somethin' over stuff like this.  He gets it.  He made us, for cryin' out loud.  He knows how we are.

So Dwina... I'm glad you gave voice to those emotions.  The pressure of holding it back... or in, or down, or whatever... well, it could only result in disaster later.  I admire you for having the courage to let us see that you aren't impervious.  Like I told you on FB... If you didn't have moments like those, it would make you a Stepford Wife.  And that would be creepy and wrong.

I'm still prayin' my ass off for you all, girl.  And I'm holding that faith and belief in my heart that it's gonna be alright!




UPDATED (3/13/10 5:15pm):  Things are looking pretty good today!  Dwina's FB status from earlier today:




 "Blood transfusion went well!!! I got to do some care for him this afternoon!!! Which makes me feel like a mother!!! His fio2 is down to 73% and his o2 sats are great!!! He looks nice and relaxed!! Grandma sent me and Jeff videos of sis riding a bike, then checkin out the baby chicks at rural king!!! She looks like sheis having a blast at Camp Grandma/Papa!!!!! I get to see her tomorrow, YAY!!!"


To learn more about Congenital Diaphragmatic Hernia (CDH) follow this link:



UPDATED (3/16/10 12:00pm)Things are again looking better!  Lil' Man was declared strong enough for surgery today, and is in the OR as I type this!  Expect news later this evening!

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